Initiatives

Initiatives

Stories, programs, and resources that fuel awareness, hope, and forward movement

Two Disabled Dudes Podcast

Sean Baumstark & Kyle Bryant continue to team up via this weekly podcast. Tune in for a funny yet heart-wrenching exploration of life beyond circumstances. Capturing a world-wide audience, this show is available on Apple Podcasts, GooglePlay & Stitcher

Find It On:




Apple Podcasts





Spotify





iHeart Radio


Rare At Sea

Rare At Sea brings together families and individuals from the rare disease community for a one-of-a-kind cruise experience. It’s a space to unwind, meet others walking similar paths, and build community in an environment filled with warmth and shared understanding. The heart of the trip is connection, laughter, and time together.


Explore Rare At Sea

The Ataxian Flim

Unable to walk due to a rare neuromuscular disease, Kyle Bryant, along with Sean Baumstark and two other teammates, compete in Race Across America. This film captures their journey and includes stories and perspectives from other families affected by Friedreichs Ataxia.

Watch it on YouTube




You Tube


Ataxian Athlete Initiative

An annual competitive grant opportunity awarding individuals living with ataxia adaptive cycling equipment. Made available by FARA and rideATAXIA

Highlights


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