We created the word. It’s a hybrid of determination and resilience.
We created the word – it’s a hybrid of determination and resilience. It’s so much more than one particular effort; It’s a way of life.
Determination of the mind, resilience of the body. It’s making your mind up to hit the mark, reach the top, cross the finish line no matter what. Followed by the resilience needed in your body to do so. Run another mile, summit another peak, swim another lap. Life isn’t easy. There is always a reason to quit. But we don’t dwell on those.
De:terminence is a nonprofit community that turns hard circumstances into meaningful momentum. We raise awareness, restore hope, and bring people together to take on bold challenges — proving that rare disease and disability may change the path, but they don’t erase the summit.
At our core, de:terminence brings people together. Able-bodied community members rally around those who need support — offering encouragement, muscle, equipment, funding, or hands-on help — to ensure no one is kept from a meaningful physical challenge because they need a little extra assistance. We show up as spotters, pushers, pullers, and problem-solvers so everyone has the chance to experience the beauty and power of physical achievement.
Our able-bodied team members don’t just lend strength — many also fundraise to provide the gear, resources, and financial support required to help another person reach their goal. Their work reduces barriers so the only thing left is the challenge itself.
The Finish Line Grant Program was created to open doors — not just to events, but to possibility. Many people living with rare disease or disability want to take on a physical challenge, but the financial barriers can be overwhelming: specialized equipment, travel, registration fees, mobility support, or the additional resources needed to participate safely.
This grant helps remove those barriers. We provide financial assistance so individuals can pursue the climb, ride, race, or adventure that inspires them. When someone raises their hand and says, “I want to try,” the answer shouldn’t depend on what’s in their bank account.
The Finish Line Grant Program turns community support into opportunity — giving every person the chance to move forward, feel strong, and cross a finish line they once thought was out of reach.
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It’s about proving that when we show up for ourselves and each other, there’s no limit to what we can achieve.
De:terminence was founded by Sean Baumstark shortly after being diagnosed with Friedreich’s Ataxia in 2007. This rare, debilitating, degenerative neuromuscular disease is slowly robbing Sean of many physical abilities.
With the help of friends and family, Sean launched this movement in order to help others cross finish lines.
Sean Baumstark- Founder
Secretary
CFO
Director
Director
Director
Director