Stories, programs, and resources that fuel awareness, hope, and forward movement
Sean Baumstark & Kyle Bryant continue to team up via this weekly podcast. Tune in for a funny yet heart-wrenching exploration of life beyond circumstances. Capturing a world-wide audience, this show is available on Apple Podcasts, GooglePlay & Stitcher
Rare At Sea brings together families and individuals from the rare disease community for a one-of-a-kind cruise experience. It’s a space to unwind, meet others walking similar paths, and build community in an environment filled with warmth and shared understanding. The heart of the trip is connection, laughter, and time together.
Unable to walk due to a rare neuromuscular disease, Kyle Bryant, along with Sean Baumstark and two other teammates, compete in Race Across America. This film captures their journey and includes stories and perspectives from other families affected by Friedreichs Ataxia.
An annual competitive grant opportunity awarding individuals living with ataxia adaptive cycling equipment. Made available by FARA and rideATAXIA
